Getting to know the daily life of the children

I’m having a hard time to really picture the daily live of a child with cerebral palsy (CP) here in Bhutan. I have worked with several children with CP and have seen them a couple of times (if they weren’t missing the physio sessions because they are often ill). What is very practical is that their parents or caregivers like the aunt or grandfather are always here in the centre while their child is here. So, I always take this chance to get them on board and involved. The caregivers are also very willing to learn as they feel they don’t really know how to best support their child. Often they can’t speak English and some of them can’t even speak Dzongkha (the national Bhutanese language) as some come from the East of Bhutan where they speak another language called Tshangla. As there is no centre or support for children with diverse abilities in the more rural areas and especially in the East of Bhutan a lot of caregivers leave their families and known surroundings and come to Thimphu, the capital of Bhutan. They do this for their child to give him or her a chance to have some proper care even if it is much more difficult  to have to build up a new life far from home for them  
So, during therapy I often get another caregiver to translate for me. I need to know how the daily life of the child looks like, what activities he or her can do and In which positions the child is most often during the day. Do they already do specific exercises with the child? What would benefit the child and the family the most if it would improve? What goals should we set? What assistive devices does the child already have? 
I need to know those things to be able to help the child more effectively otherwise I might work on something in physio which the child will never do in daily life and therefore won’t profit from it on the long run. 
But when I ask some of the caregivers most said that their child just lies on a mat most of the day. They often don’t really have any assistive devices and if they have a wheelchair then the child only sits about half an hour in it each day as it then starts to cry. My guess is because the wheelchair isn’t really fitted to the child’s needs and therefore gets painful. Then they have 1-2 exercises they do with the child per day and for eating the child often just sits on the caregiver’s lap but the rest of the day it spends lying down. Except when it comes to class for which the caregivers take the bus which is provided by ABS to the centre and then carry the child on their back inside to class if it can’t walk. They are very used to always carrying their child everywhere even if it is already big and heavy as they don’t have any alternatives. 
I can’t really picture a day in the life of such a child. How do the caregivers do the different daily routines with the child, how much can the child be active itself, where could we add more meaningful activities to the daily routine of the child, how does the child move in the house? Is it always carried? Or is there potential that the child could learn to be more mobile itself? 
As long as I can’t really imagine how each step of the daily life looks like it’s so difficult for me to make suggestions for the parents and support them and train those specific things with the child. Therefore, I will want to do some home visits to those families to really get a feeling for it. Their lives are so different from the ones in Switzerland - for example we never carry the children around but they get a wheelchair and spend most of the time in that and not lying down. Another challenge will be to find an assistive device which is applicable for outdoors so that the children don’t have to be carried. If I look at the roads and pavements and door entrances, I see that there is no easy access for wheelchairs. I will have to think hard about what solutions would be helpful in these surroundings. But I just think that having to carry their children on their backs also isn’t healthy for the caregivers. 
Next week I will hopefully be able to do my first home visits if everything works out as planned.